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I’ve Been Diagnosed With Dementia – What’s Next?



Give Yourself Time to Process

It’s normal to feel a flood of emotions—fear, sadness, even anger. Take the time you need to let the news sink in. Talking with a trusted friend, family member, or counselor can help you work through your feelings. Remember: you are not alone. Millions of Americans live with dementia, and there are communities, resources, and professionals ready to support you.


Learn About Your Diagnosis

Dementia is an umbrella term, and there are many types, such as Alzheimer’s disease, vascular dementia, and Lewy body dementia. Each type can affect the brain in different ways. Ask your doctor for clear explanations and written information you can revisit later. The more you understand, the better prepared you’ll feel.


Build Your Care Team

Don’t face this alone. In the U.S., support may include:


  • Primary care providers and neurologists for medical guidance

  • Occupational or speech therapists to help with daily skills

  • Social workers to connect you with community resources

  • Support groups where you can share experiences and advice


Having a team means you don’t have to carry the burden by yourself.


Take Practical Steps Early

Planning ahead gives you a sense of control and eases the load on your loved ones later. Consider:


  • Legal and financial planning – Consult an attorney about powers of attorney, wills, or advance directives.

  • Healthcare planning – Discuss your wishes for future care with your family now, while you can make your preferences clear.


Safety adjustments at home – Simple changes like better lighting, labeled drawers, or pill organizers can make daily life easier.


Focus on Living Well Today

A dementia diagnosis doesn’t erase who you are. There are many ways to maintain independence and quality of life:


  • Stay active. Exercise, gardening, or even short walks help brain and body health.

  • Eat well. Diets rich in vegetables, whole grains, and lean proteins can support memory.

  • Engage your mind. Reading, puzzles, or learning new hobbies keep your brain stimulated.

  • Stay social. Spend time with family, join a club, or attend a support group—connection is powerful medicine.


Final Thought

Being diagnosed with dementia is life-changing, but it is not the end of your journey. With the right support, planning, and mindset, you can continue to live a meaningful life. Surround yourself with people who care, use the resources available in your community, and remember: you are still you.


Taking the first step—asking “what’s next?”—is already a sign of strength.



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